Saturday, March 22, 2014

Next Music on Main to fight muscular dystrophy in kids

LAKEWOOD RANCH — The next installment of Music on Main, Lakewood Ranch’s monthly concert series, set for Friday, April 4, will benefit Parent Project Muscular Dystrophy (PPMD).

The nonprofit was founded by parents and grandparents of children with Duchenne muscular dystrophy, a genetic disorder diagnosed in childhood that results in progressive muscle weakness, which leads to serious medical problems, particularly relating to the heart and lungs.

Local residents Nick and Jennifer Tullio, whose 10-year-old son, Grayson, was diagnosed with Duchenne in 2005, will be pouring and serving beverages to Music on Main guests along with about 20 volunteers. Proceeds will go toward PPMD and its mission to end the disease.

“We are so grateful to the Lakewood Ranch community for their support,” said Jennifer Tullio in a media release. “Every dollar that’s raised gets us one step closer to finding a treatment to help Grayson and the thousands of boys like him who are living with Duchenne.”

The free event begins at 6 p.m. on Lakewood Ranch Main Street.

No comments:

Post a Comment